4th Feb..... World Cancer Day..... make everyone aware! Yesterday I just couldn't put any words together, I was really not feeling anything at all. After the bashing I've had over the last month, I just feel weak and numb and a bit pissed off really!! So this is what I came up with today...... my … Continue reading World Cancer Day →

Thank goodness..... by the skin hanging off my weary bones, we reached February!! I am so glad to see the back of the last month. I don't even want to say it's name. Today couldn't have come any sooner for me. Literally day by day, I am getting some strength back into my body. It … Continue reading A Whole bag of Porridge →

Well where to start........! Its been a bit of a rough ride. Pretty horrendous and confidently the worst month of my life. I have been in a lot of pain, extreme, so much that I almost lost my head in it all. Well, I did lose my head and hit rock bottom and a bit … Continue reading January Fail…… →

Its almost the end of the year and I haven't written my end of year post. So here it is. 2019 has been pretty brutal. Well it has in no uncertain terms. There's being unwell and there's this!!! Ridiculous. Totally and utterly!! This last week has just finished me off completely. However, on the plus … Continue reading Goodbye 2019 →

Everyone is sharing pictures of Christmas day with their loved ones, presents all wrapped up and tables set, matching pyjamas and all that!! Well here's me doing a royal Sal special tradition and all I can say is after 2 days I am really pleased to say that I managed to stand up and have … Continue reading The Big Christmas Wash Out…. →

Probably the reason I am not feeling very dandy for any of this festive season is because it is always a time of reflection, a time to look back over the year you just had. Anyone facing a challenge, grieving, working through or recovering from illness.... Christmas is just that time that heightens all emotions. … Continue reading Reflection… →

Excuse my sarcasm!!! Whilst most attended, attending or ready to attend Christmas do's..... I get my own little treat! I'm not jel..... been there done that!!! Got those memories!!!! What fun they were too!!! The lead up..... the preparation.... the night..... and the MOP UP afterwards going well into January !!!!!! For moi, a different … Continue reading Bonus week….. →

Every few days, someone reminds me how 'strong' I am, or how I am coping well. I am coping, some days better than others. This is my situation. Everyone has challenges in their lives and they will message and tell me that they are struggling or feeling down or angry with whatever is going on … Continue reading Perspective…… →

An Akhand Paath is the continuous, front to back, reading of the Siri Guru Granth Sahib. This reading is an important and extremely meaningful meditative practice for Sikhs. Akhand Paths are read in honor of major life events like marriages, funerals, and births. They are important community events and conducted either by a team of … Continue reading Akhand Paath →

For a start its freezing! Folk are like, oh I don't mind the cold as long as its not raining!!!! Really??? YOU DON'T MIND IT BEING -3 DEGREES???? WHAT??? I am over here like.... Is anyone with me on this ???!!! Everyone is gearing up for Christmas! Eagerly waiting to put the tree up, start … Continue reading Bumbling Along…… →

I seem to have a lot of my energy back !! It is attributable to two main reasons, well a group of reasons but I think I am working through it all well. I am able to walk without my legs feeling like hefty weights being dragged around. I wake up without my first thought … Continue reading On Friday she rested…. →

An agonizing week. I call it the huffing and puffing week! I kept myself as busy as possible but ...... just the waiting. You just do not know what the scan might show. They can literally say anything. You just dread and try not to think bad thoughts but prepare yourself all the same..... .......but … Continue reading The Results are in…… →

GET INNNNNNNN!!!! So there we have it, my little world, a bit more connected!! A little more painted! We have Greenland on board!! Quite thrilled with myself !! It has been a year trying to reach that beautiful part of the world and today we have achieved!!! Welcome friend in Greenland and thank you for … Continue reading WELCOME GREENLAND!!! →

A beautiful lady named Cristina found my story through my instagram. Cristina was from Milano, Italy. We exchanged stories and then became good friends supporting each other through scans and hospital days. There was much love shared through this support....... since we barely knew each other and yet connected through such strong and desperate times. … Continue reading A very harsh week…. →

Another day, another conference...... another lanyard!! This one specifically with regard to clinical trials and patient participation. Today, I had to stop several times during the day and remind myself I was there as a patient and not at work. It was a fine line. I was shouting out in my head at how valuable … Continue reading Patient’s Voice →