GET INNNNNNNN!!!! So there we have it, my little world, a bit more connected!! A little more painted! We have Greenland on board!! Quite thrilled with myself !! It has been a year trying to reach that beautiful part of the world and today we have achieved!!! Welcome friend in Greenland and thank you for … Continue reading WELCOME GREENLAND!!!
A beautiful lady named Cristina found my story through my instagram. Cristina was from Milano, Italy. We exchanged stories and then became good friends supporting each other through scans and hospital days. There was much love shared through this support....... since we barely knew each other and yet connected through such strong and desperate times. … Continue reading A very harsh week….
Another day, another conference...... another lanyard!! This one specifically with regard to clinical trials and patient participation. Today, I had to stop several times during the day and remind myself I was there as a patient and not at work. It was a fine line. I was shouting out in my head at how valuable … Continue reading Patient’s Voice
I have had my break! It was amazing, I am not complaining at all! I am so lucky........... however, sometimes, I just want to lie on the floor and have a big tantrum! I really wanted to forget completely while we were on holiday and just totally break off but these lapatanib tabs are really … Continue reading You’ve had your break!
I'm just lying here, listening to the gentle rippling of the waves under the early morning sun. It is 7am and the island is still and calm.... most are asleep! Crabs darting in and out, racing over the sand, light shades, hardly visible. I venture for a short walk along the beach, the water coming … Continue reading Kuramathi Island Maldives
As some of you may have realised by now, for every rubbish thing that happens, I book a treat for myself to do something nice for me or for the family. There are no rules any more in life ..... well there are..... Sal's rules!!! I'll come onto my own treat later but the pharma … Continue reading My cancerversary present…..
Sometimes I assume everyone knows the cancer lingo. "Cancerversary", if you havent heard of it, is the day you were diagnosed, or the day you were given the a clear..... you can use it as you wish. Last week sometime it was my cancerversary.... the day I was told my cancer was a stage 4. … Continue reading Cancerversary….
As we approach.......actually I have overshot end of quater 3!! Started writing this in Slovenia, but then all the nonsence happened!! So a little after quarter three in the year, I am bringing you this update. I have to follow through, I can't leave things part way through......My final one will be in Dec!!! Some … Continue reading Blog….. Third Quarter
Very cautiously.... the last few days have been quite normal. A very weird feeling, I have been quite unwell for a very long period of time. It actually felt weird and I almost felt guilty for having strength and feeling like a normal human being. Its time to get my life back on track! I … Continue reading Chilli Sauce
I returned from Veduna at 3am on Wednesday morning as my flight was a bit delayed!! Gurv marched me to the hosp at 9am to get checked out. Bloods were taken and sent off as a priority so results were received within 4 hours. I haven't seen the report myself but I have been informed … Continue reading Road Trip!!!!
Something happened yesterday and we were all left jaws hanging! Us, meaning Ana, Chris, Ivana, Selome and me. We also have Alex and Vlado who are also here in Veduna right now, artist and chef respectively who heard the story the next day !! I bring you the chain of events as they happened as … Continue reading The Overdose !
A few people had said before I left for this that they can't wait to hear all about my trip.... well this is that blog and the next one is part 2 of that blog too!! Before I came, I felt like I wanted something to happen, spiritually or other. There was to be a … Continue reading My Special Place in the World.
Well you know I said I had a good strong day on Thursday after my herceptin, well I obviously spoke too soon as I was throwing up until 3am in the morning. Gaviscon is vile and I dont know how on earth people drink it. It is so gungy.... probably made me even worse, I … Continue reading Veduna…..we have arrived!
Today an even stronger day. I am suddenly feeling human again. Woke up very early for an hour of prayer, followed by another hour of prayer while I lay on my biomat. I will be away until tuesday so wanted to get as much in as possible before I go. I finally managed to walk. … Continue reading Herceptin No 3…… done!
Stronger Sal! I've had so many people check up on me this week. It has been a rough few weeks but I am pleased to report that Sal is feeling a lot stronger day by day! Making progress in small steps. Some people take things for granted and don't realise how cancer can affect the … Continue reading Stronger…..